| Ethics, Law and Policy Group
Purpose of the Ethics, Law and Policy Group:
The Cancer Genome Atlas (TCGA) has established the Ethics, Law and Policy Group to identify and address critical ethical, legal and social questions faced by researchers and patients over the course of the project. The group’s output will help policy makers formulate and implement effective and fair policies related to cancer genome research. Moreover, pursuing solutions to questions regarding the ethical, legal and social implications of cancer genome research will allow new discoveries made from cancer genomics to be safely and effectively translated into the clinic that ultimately benefit cancer patients.
Relevant issues include, but are not limited to:
- informed consent process allowing for:
- sequencing of DNA from both cancer and normal tissues
- collection and linking of family, health and medical records to DNA sequences, as well as other genomic information
- sharing of this information via a controlled-access database that will be made widely accessible to researchers around the world
- unique data release and intellectual property issues
External Membership
William P. Bro, B.S., Kidney Cancer Association
Lynn Dressler, Dr.P.H., University of North Carolina
Chanita Hughes-Halbert, Ph.D., University of Pennsylvania
Catherine E. Ivy, M.S., The Ben and Catherine Ivy Foundation
Staff Members
Carolyn Compton, M.D., Ph.D., National Cancer Institute
Martin Ferguson, Ph.D., National Cancer Institute
Daniela S. Gerhard, Ph.D., National Cancer Institute
Peter Good, Ph.D., National Human Genome Research Institute
Elizabeth J. Thomson, D.N.Sc., R.N., National Human Genome Research Institute
Resources Related to the Work of the Ethics, Law and Policy Group:
Belmont Report
Research Regulations
Bioethics Resources
Fort Lauderdale Report
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